Polymyalgia Rheumatica

Symptoms

Polymyalgia rheumatica (PMR) tends to come on suddenly, sometimes overnight. People with the disease often develop an intense pain and stiffness in the shoulders and hips over a few days. The stiffness tends to be worse after a period of rest and in the morning, which can make it difficult for people with PMR to get out of bed and get dressed.

In some people with PMR, the stiffness gets better once the joints have had a chance to get “worked out”. In others, the pain and stiffness can last all day. This can make sleeping uncomfortable, and most people who develop PMR suffer from significant fatigue.

About 15 of every 100 people with PMR that also have temporal arteritis (Giant Cell Arteritis) may experience those symptoms as well. People with temporal arteritis have inflammation of the arteries along one or both sides of the head (along the temples). This can lead to sensitivity, headaches, or twinges of pain along the temples, and in more severe cases it can cause blurry vision or even vision loss.

Diagnosis

Polymyalgia rheumatica (PMR) is best diagnosed by a physician familiar with the condition. This is often a rheumatologist, a type of doctor that is an expert in arthritis and autoimmune disease.

Many diseases can look like PMR so a careful assessment is important. For example, rheumatoid arthritis (RA), some types of cancer, heart infections, and thyroid conditions can cause fatigue and stiffness in areas including the shoulders and hips.

To diagnose PMR, a physician will start by taking a complete history. The disease can be suspected in older patients with a history of pain in the shoulder and hip regions, along with morning stiffness and fatigue. The physician will then perform a thorough physical examination to exclude other conditions. Finally, they will often order blood tests, x-rays, and possibly other types of tests to support the diagnosis.

Common Tests for PMR

Causes

Scientists aren’t sure what causes PMR or why it is a self-limited disease (a disease that goes away on its own) in about half of people but can last much longer and behave like a chronic (long-term) disease in others.

Some theories propose that it might be caused by an external factor like a virus that stimulates the immune system to behave in an undesirable way. If that’s the case, scientists aren’t sure why some people get it but others don’t.

Whatever the cause, PMR causes inflammation in the joints and structures surrounding the joints of the shoulders and hips.

Treatments

Treatment of polymyalgia rheumatica (PMR) usually involves medications to address inflammation as well as physical therapy to keep the joints moving properly. The disease can often by fully and effectively treated with the right therapy, which means it’s possible for people affected by the disease to return to their normal day-to-day lives.

It’s important to treat the disease early to protect and restore a maximum range of motion in the shoulders and hips. If a person with untreated PMR changes their habits and stops using their sore joints in certain ways due to pain and stiffness, the limited movement can lead to contracture, a type of permanent damage involving shortening of the affected muscle or joint.

Physical Therapy and Exercise Treatments for PMR

Physical therapy and the right sorts of exercise can improve the pain and stiffness that people with PMR experience in their shoulders and hips. This treatment helps protect the joints by strengthening the muscles around them and should be done daily to achieve maximum benefit.

Daily exercise can also be helpful in reducing fatigue and any possible emotional distress of the disease.

A trained arthritis physiotherapist can help design an exercise program to return a patient’s shoulders and hips to their full range of motion.

Medications for PMR

Corticosteroids (prednisone)

Prednisone is the main medication used to treat PMR. It works by fighting the inflammation caused by PMR. In most people, symptoms are noticeably better within 24 hours. In some people, their stiffness completely disappears after just one dose.

Once the symptoms of the disease are under control, the dose of prednisone is tapered (gradually reduced). People with PMR usually have to continue taking a low dose of prednisone for at least 1 year to prevent the inflammation from returning.

Stopping prednisone can be difficult for some people because the inflammation can return if it’s stopped too soon. In such cases, doctors might recommend other medications such as NSAIDs or DMARDs to make it easier.

When used for long periods of time, corticosteroids can have side effects. People who take corticosteroids for 3 months or longer are advised to take a daily calcium and vitamin D supplement to protect their bones. Sometimes other medications are also recommended for bone protection. Patients should discuss the risks and benefits of using prednisone with their doctor.

NSAIDs

Non-Steroidal Anti-Inflammatory Drugs (NSAIDs) help reduce the inflammation caused by PMR and can also help to reduce pain. They are usually not as effective as prednisone for the initial treatment of PMR, but might be prescribed in addition to prednisone to treat cases that still have symptoms even after being treated with prednisone.

NSAIDs can also help reduce the dose of prednisone in patients who have been taking that medication for a long time.

Analgesics (Pain Killers)

Analgesic medications only control pain, and do nothing to control PMR or prevent further joint damage. Analgesics can range from simple things like acetaminophen (Tylenol) to more potent narcotics like morphine.

DMARDs

Disease Modifying Anti-Rheumatic Drugs (DMARDs) are medications that are frequently used for other types of inflammatory arthritis such as rheumatoid arthritis. Certain DMARDs such as methotrexate or plaquenil can help some patients being treated for PMR reduce their dose of prednisone to help minimize its side effects.

Living with PMR

The pain and stiffness caused by PMR can sometimes limit people’s normal activities, including work. There are many things people can do to lessen the impact of PMR on their work and daily routine.

We recommend adjusting features of the workplace to help make working with PMR easier. For example, people that sit for much of the day can adjust the position of chairs and desks for proper posture. Vehicle seats can be adjusted to make driving more comfortable and reduce stress on joints and affected tissues.

Those who find out they have PMR while they’re still young can consider choosing work that isn’t physically demanding on their joints and back.

Exercise is important to overall health. It also helps keep the joints moving properly, and helps protect them by strengthening the muscles around them.

The level and amount of exercise people with PMR can do depends on the activity of their disease.

A trained arthritis physiotherapist is the best person to help design an exercise program tailored to the needs of patients with PMR.

The following are some useful articles on exercising with arthritis:

Exercise and Arthritis: An article by arthritis physiotherapist Marlene Thompson

Exercising in a Flare: Another excellent article by Marlene Thompson on how to cope with flares through your exercise routine.

Alcoholic beverages are not an effective treatment for PMR, and they can interact with many medications.

Smoking is not healthy for people with PMR. It can make symptoms worse and harder to treat.

Research has shown that some arthritis medications do not work as well in people who smoke.

We recommend that smokers quit immediately to reduce the impact of their symptoms, improve the effectiveness of their medications, and improve their overall health.

Travel is still possible when you have PMR.

It is best for people with this disease to get organized well in advance of a trip to ensure a smooth, comfortable, and enjoyable time.

Check out our Travel Checklist page.

Though PMR does not particularly cause a loss of sex drive, it can cause pain, fatigue and emotional hardships. These hardships risk creating barriers to sexual needs, ability, and satisfaction.

People with PMR can take comfort knowing that sex and intimacy can be maintained. In many cases, it can help draw partners closer together, especially through improved communication.

For more information on intimacy and arthritis, a great book is: Rheumatoid Arthritis: Plan to Win by Cheryl Koehn, Taysha Palmer and John Esdaile.

Polymyalgia Rheumatica (PMR) has no effect on fertility. The chances of getting pregnant for people with PMR are the same as with people that don’t have it. PMR also has no known effects on the developing fetus or the newborn.

The two main issues doctors worry about with PMR and pregnancy are:

Following the basics of healthy eating can help improve health and well-being in everyone, including those with PMR. Keeping a healthy weight helps reduce the load on weight-bearing joints including the spine, hips, and knees, making it easier to live with the disease.

Unfortuantely, no special diet has ever been proven to significantly alter the course of PMR or any other types of arthritis.

In addition, no known natural remedies or complementary therapies have been proven to help PMR in any significant way.

People with PMR should consult with their doctor to make sure that any supplements or alternative therapies they consume will not negatively interact with their medications.

Its very important for people with PMR to attend regularly scheduled appointments with their rheumatologist, and promptly get any tests that are ordered by their doctors.

It is often very important that medications are taken exactly as prescribed. Patients should always talk to their doctor about any issues they experience, or if they would like to change anything.

Polymyalgia Rheumatica is a chronic disease and a rheumatologist is the best partner in helping patients achieve the best quality of life possible.

Additional Resources for People with PMR